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Ewings Sarcoma Survival Rate

The complete chance of long-term endurance with Ewing’s sarcoma is at present about 60%.

This is a comprehensive average figure from various studies. Patient survival is about 75% for those suffering with localized tumor (specifically if the tumor is located under the elbow or the midcalf) and about 25-30% with tumor that has covered other parts of the body.

The over all situation does not look very bright. Do you know of your loved one or near and dear ones who are suffering from this. What has your experience been like on this issue.

pixel Ewings Sarcoma Survival Rate

    99 Responses to “Ewings Sarcoma Survival Rate”

    1. Diane Alexander says:

      My sisters granddaughter has Ewings Sarcoma, and the tumor has hooked onto her spine and has kept her from feeling, she is on Chemo in the Columbus Childrens’ Hospital now, they say she is doing fine. I heard once the tumor is gone another one comes back is that true? Thank you Diane

    2. kalpit says:

      no.. I suffered from ewing’s sarcoma before 5 years… I am completely out of this sarcoma and living healthy life.. This tumor is agressive but the recent drug combination is highly effective and there are least chances once she will be out of it… Now pray to god… If she responds well to chemo therapy then chances of recovery will be good… I will also pray to god for ur sister’s grand daughter…

    3. Wanda says:

      One of my friend’s daughter has Ewing’s sarcoma and 1 month ago was told that the chemo had failed. She apparently maxed out on doses and a PET scan shows metastasis. She had previously had an amputation due to this cancer and as an infant had retinal blastoma. Could her tumor early in life have contributed to her current condition? I spoke to her mother this morning and all family had gathered by the bedside. Please pray for them as she is only 16 and is a mentally gifted student; her mother’s only daughter. This one is hitting very hard!

      • Cherie says:

        I am very sorry to hear about your friend’s daughter. My 16 yr old son was treated for ES and it has returned his month and we are trying different chemo drugs and will be doing a stem cell rescue. Is a stem cell rescue a possibility?

    4. vicki says:

      My 21 year old daughter has Metastasis Ewing’s sarcoma it had started in her hip bone , she had done chemo and it had fed her cancer causing it to spread into her lungs.. The doctor has told us that she has less than a month but refuses to tell her. please pray they come for her and soon they find better support programs for our young adults

      • Cherie says:

        How is your daughter doing? I guess my next question is how are you holding up during all of this? My son’s ES has returned so I understand how nasty of a cancer ES is.

      • Jen Krans says:

        Hey all. I am 33 years old, female. I have 3 kids of my own (boys, 4 years apart) and 2 I adopted. I was diagnosed with Metastasis Stage 4 Ewings in June 09. I went 12 rounds of chemo, 31 days of radiation, and 6 bone treatments of Zometa after that. There was a pea sized tumor in my leg, 20% in my marrow, and 8 spots on my lungs. I seemed to have it beat, but now there’s a new tumor in my left shoulder… The docs say spots on lungs & other tumor are still gone. I think ES is wierd & VERY unpredictable from everyone I’ve talked to. They ordered 10 days of radiation on the new tumor & then will run more tests. The worst thing is the “limbo” but every doc who’s seen my chart said they wouldn’t have given me a year — and I’m back to work part time… so I think the fight is the most important thing!

    5. amanda says:

      In October 2007, my son was three years old when he was diagnosed with metastatic Ewing’s Sarcoma. His primary tumor was located in his right pelvis and he had disease present in both lungs. After 6 cycles of VIDE (vincristin, ifosfamide, doxorubicin, and etoposide), a radical surgery to remove his right pelvis and tumor, and high dose melphalan and busulfan with a stem cell transplant, he was declared in remission in May 2008. Nine months later he relapsed. They found two small nodules in his right lung. They surgically removed these, did lung radiation, then he completed 12 cycles of vincristine, topotecan, and cyclophosphamide. He’s been in remission again ever since April 17, 2010, and will be going to kindergarden this year.

      • Nigel O'Neill says:

        hey Amanda im so glad to hear your little boy is doing well. my Daughter was diagnosed with an almost identical case of ewings ( left pelvis ) with lung metastisis she has had the same treatment plus 30 cycles of radiation to her pelvis area and relapsed in september last year. our doc now wants to radiate her lungs this does concern me somewhat and i was curious as to how your son has recovered from radiation ?? and has the radiation caused any adverse effects on his breathing or any other adverse effects??? thank you so much Nigel

        • Lisa says:

          My son was a runner on a college scholarship when diagnosed at 18 with metastatic Ewing’s. Original sight was a 7 inch tumor in his right leg that went to hips, spine, lungs, skull, and bone marrow. Had radiation to all spots. 29 treatments to his lungs. Against the odds, he is doing well. His lung function is close to normal. (almost 2 years out of treatment) He is even doing some running!

    6. Suzanne says:

      My 11yr old son has ES in his left femur. He had it all through his thigh as well but that was killed with the chemo. In June he had his femur removed, radiated till it was dead. they then cut part of his fibula bone and inserted into the dead femur and reinserted it. They said it was localised to his leg but he is now ongoing another 8 cycles of intensive chemo and they have not scanned anywhere except his leg. I am concerned that the op could have spread it. Is this a justifiable fear or should I stop worrying?

    7. Sonia says:

      If you don’t mind me asking, how did your son’s symptoms begin? Did they tell you it was growing pains? Was the pain constant or did it come and go? I’ll be praying for your son and family. Thank you!

      • Sonia says:

        This was for Suzanne above.

      • Suzanne says:

        My sons symptons started as general pain in his leg which would get extremely painful at night. He first complained in july 09 we thought he had got hut at football. Then as it went on we got an xray in September which was normal and did an ultrasound as well – both were normal. then a blood test came back with JA Arthritis. I researched this and his symptonsfollow the same pattern so we accepted this. However we took him back to Emergency 2 time in December because he was screaming with pain. Both times they just said it was normal with our diagnosis or that it was growing pains. By late Jan He was pointing out a specific area of his leg so in Feb we went back to Emergency at a diff hospital and a student wnated to confirm our diagnosis so they did an xray. This time bone was double thickness with a mass on the end so we were immediately transfered to childrens hospital and our journey began. Hope this helps.

        • Sonia says:

          Suzanne, thank you so much! My 5 years old son has had pain in his left thigh and would wake up in the middle of the night and cryin that he can’t stand it anymore. I finally took him to the emergency room. They did xrays and found nothing however referred us to Children’s ortho. Of course by the time we had our appt. he had no pain so they just said keep an eye on it. That was June or July. We had trick or treat last night and now he says it hurts again, the same spot. I’m hoping it was because we did a lot of walking however he has played football and walked the zoo so I’m not sure. We didn’t have problems during football. Just concerned that something may go un-noticed. I thank you for your time and still praying for you and your son. Hope he is doing well.

          • Suzanne says:

            Thnku for yr kind thoughts – he is now on his last chemo – due Saturday and then we will do all the diagnosis scans again to check its all gone – they said hes got about a 35% chance of it coming back. With Mitch the pain cam and went and was especailly bad at night. if u r worried try to organise a bone scan as an xray wil not detect it when it is deep inside the bone. I have everything crossed for u that it is growing pains.

    8. Brad says:

      I had ewing sarcoma on my left mandible(lower jaw) back in 1993 when I was 19, I have been cancer free since then, so I want to give hope to all you have to fight this nasty cancer. Take care all

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