This malady is in news these days quite a bit because of the network TV story that showed the struggle of a Mom and her son who was afflicted with this.
Joel, a Thomas the Train lover and photography nut, was born with a rare genetic disorder called Treacher Collins syndrome that affects the bones in his head and face and forces him to breath and eat through surgically-inserted tubes. After the story ran Christina said they received more than 50 e-mails offering support, encouragement and assistance.
